Class of 2020 – Covid Chasm

Avery was 4 when he informed me of his plans to move out when he grew up. He said, “Mama, when I’m big I’m going to have a house that’s just mine, but you will have a room.”

“Oh? Ok. What will my room look like?” I asked, playing along.

“It will have rainbows and butterflies,” Avery responded.

“What will your room look like?” I asked.

“Duh, mama. Skulls,” he answered.

It was precious at the time but I couldn’t help but be surprised at his forethought. His older siblings had declared they wanted to live with mommy “forever”. Yet Avery already had a life plan independent of being cared for by me. 

As he grew I imagine he hated every moment of being forced to try fruits and vegetables, take naps, brush his teeth, wear appropriate footwear, clean his room…but now he stands before me as a man who is fiercely independent, making his own way. I find myself searching for ways to care for him without undermining his independence. Now the ceremony of all ceremonies up until this point in a person’s life has been put on hold or cancelled – I get stuck, as a mom, in this place of self-pity and wishing things were different. I was looking at his cap and gown we ordered months ago with full certainty that this week would be the week we celebrated his achievement of high school graduation. I would have been shuttling family from airports and planning a party to honor my son. Instead we have been allotted a time for him to walk alone across a stage. Don’t get me wrong, I understand, but the gap still exists between expectation and reality. 

As we, and especially our class of 2020, mourn the loss of normalcy, it’s ok to be disappointed. Today was supposed to be different than it turned out to be. Today our BSHS Class of 2020 should have been gathering together for one last time as seniors in high school before moving their tassels, tossing their hats and stepping off the stage as high school graduates, ready to move to the next chapter in life. But God has chosen this class to endure and overcome, as they will. He will fill in the gaps between expectation and reality, and if we let Him, He will pick up each of us and gently place us where we are meant to be. 

Class of 2020, you don’t have to have it all figured out, because your Creator already does. As each of you moves forward in your journey, allow Him to lead you in every decision. And my precious Avery, I simply could not be more proud of the young man you are. My heart is full as I watch you fulfill your dreams of independence. It seems like yesterday when we had that conversation, your sweet chubby little face excited to tell me all about your future, yet here we are, on the doorstep of that very dream and I struggle to let you go. I will miss you, sweetheart. No matter how old you are, wherever I am is your home. You will never be alone, and you will always be loved. Congratulations, Avery and congratulations Class of 2020!

Sister Sister

            Once upon a time there was a darling little girl whose daddy bought her a pony and whose mama read her stories; she was blissfully singular. Then along came Alyssa, a precious little usurper. When the firstborn realized this tiny, bald, wrinkled person was for keeps, she made it her life’s mission to form a unique, unbreakable bond with her and live happily ever after in sibling harmony. But first she had to be hazed.

            I really wasn’t that bad of a big sister. I may have occasionally broken something and blamed it on her. There could have been times I spit on her head from the top bunk, or told her she was impregnated with a watermelon after she ate a seed. There is a slight possibility I gave her a haircut that made her look like she was attacked by tiny lawnmowers. If she admits to an irrational fear of the Easter Bunny, it is definitely NOT because I hid outside the bathroom window and told her the Easter Bunny was actually an evil jackrabbit. (It made her cry and I got spanked – justice was served.) I’m sure I could go on with more heartwarming examples of sisterly love but suffice it to say it was a hit-and-miss relationship in its formative years.

            It was during those years that I attended Vacation Bible School and learned about Jesus. I decided to ask Him to be the Lord of my life (see John 3:16). From that time until this I sometimes feel like Jesus is hazing me. He wasn’t/isn’t. At least not with the “Let’s do this and see what happens” kind of attitude I had when I put my little brother in the dryer or locked him in the toy box. 

            It has been through these trials, many that are senseless, self-made disasters and some that are not, that God has attempted to raise me up. I have a desire to cooperate, but I fall short every day. I, too, have skeletons just like everyone else. But instead of hiding them, I am using them to build a ladder – every day I reach higher ground until building-sized pieces of the past look like ants as I survey life from the clouds. It’s amazing up here, and nothing short of Jesus Himself will make me step down the ladder, and since He Himself placed me here, I only go up from this point. 

            It’s no coincidence that Alyssa and I are sisters. God’s been knocking on the door of our hearts for years, urging us to tell our story. We have messed up, but that isn’t the end of the story; it’s the part that invites you in to experience the grace and forgiveness that’s waiting for you. Let’s all be sisters together. I promise I won’t come to your junior high school and demand you take off the shoes you stole from me. Hypothetically. (Sorry, Alyssa)

My Avery

Foreword: Given the current circumstances of our town and the heart-wrenching sadness as a result, I wanted to take a moment to honor the love we have for our children from before birth, how that love grows every day, and to encourage all of us to cry out to our Father in Heaven for the peace that surpasses all understanding to encapsulate the hearts of the families grieving loss, experiencing uncertainty and coping with unimaginable pain.

January 2014

I just wrote a thank you card to the greatest pediatric surgeon my world has ever known. It has been 12 years yesterday since I gave birth to my precious son, and 3 weeks shy of 12 years since his life-saving operation at WVU, correcting a congenital defect and making Avery’s life possible.

Avery came along during a tumultuous time. He was my 3rdchild in 37 months. I remember sitting in my hospital bed a few hours after he was born contemplating, or maybe panicking, about how I would ever be able to successfully raise 3 such tiny people. My thoughts raced as the gravity of a preschooler and 2 babies sank in. I wasn’t ready. Our circumstances were less than ideal. I hadn’t even been able to fully freak out when the pediatrician on call came into my room. What he told me made everything I was fretting about seem so petty; I was instantly ashamed.

Avery’s belly had been incrementally distending since his birth. It was the doctor’s opinion that he may have cystic fibrosis, and needed to be flown to WVU immediately. I can’t accurately tell you what happened in those next few hours. I remember a nurse coming in and making my calls because I was sobbing. I remember being escorted into the nursery and handed a gown to put on as they placed Avery in my arms and instructed me to say goodbye in case he didn’t make it to the hospital alive. I can still feel the numbness – the inability to grasp what was happening.

Somehow we made it to the hospital. The NICU cleared as they admitted my baby boy. His tiny body endured needles and tubes as they made a way for him to get nourishment. The next 9 days would prove to be harder yet as we faced the uncertainty of his diagnosis. It wasn’t cystic fibrosis, but it would be 9 days of tests until the diagnosis of Hirschsprung’s Disease was made and then another week until he was strong enough for surgery.

Surgery came with risks. The surgeon told me to be prepared to homeschool Avery because there was a good chance he would not be fully potty trained by age 5. This specific surgery was usually part 1 of 2 and included an extended period of in-between time with an ostomy. There were permission forms to sign outlining the inherent risks of surgery on such a small person. And then after all the meetings with doctors, after all the signing, and after I once again kissed my baby for what could be the last time, all that was left to do was wait. And pray. 

To think that just weeks before I sat in a hospital overcome with worry about how I would care for 3 small children. How this had changed my whole perspective! I simply wanted my Avery to live. And live he did. He came through the first surgery without an ostomy or a need for a second surgery. He was potty trained before age 3 and has been thriving ever since. I will never forget holding him for the first time free of tubes and needles. I can still smell his baby head and feel his baby breath on my chest… What began as a question of MY ability ended with a declaration by God that with Him ALL things are possible as well as the peace that even if this story had ended differently, Avery’s life pointed to the sovereignty of my Father. But that’s easy for me to say. May the love of Christ surround all those whose story didn’t have a happy ending, and may I live my life as though tomorrow is not promised. Come home safely, sweet Riley…rest in peace, precious Lexus.

Plastic

Alyssa and I have a horribly inappropriate line of Barbie and Ken dolls based on some very politically incorrect stereotypes. We began creating them about 10 years ago but decided not to market them because God wouldn’t think it was very nice. We have one called “Perfect Christian Barbie”. Her name is Joy-Ellen: she wears her hair in a bun with slacks, a button down shirt with puffed sleeves and sensible shoes. She doesn’t allow her children to say the word “fart”. Then there’s Donnell. He’s a skinny white guy who wears his pants below his butt and a flat brimmed hat that’s always sideways. He drives a pimped out 1999 Honda Civic with awesome rims and a kick-butt stereo but the hatch has to be closed with a bungee cord. The Civic is sold separately. 

Stuff like that shouldn’t enter my mind, probably, and here I am broadcasting it for the world (or 10 people) to see. I do have a reason, though, and it isn’t solely entertainment. Sometimes my lenses get fuzzy. While I should be loving people right where they are I’m busy inventing imaginary dolls based on what I think of them, or a composite of similar personalities. So to be fair, I thought I’d invent a Barbie based on myself. 

“Stressed Out Summer” comes dressed in jeans she’s worn for 4 days, boots she wears so often they may as well be part of her uniform and we don’t know if she even has a shirt on because her coat never comes off. If her shirt did come off it would reveal stretch marks covering her entire abdominal area. She has a realistic callous on her left hand from logging 3,000 miles per month driving to and from work and taking the children to activities. She only eats one full meal a day and comes with a bag full of Goldfish crackers, a 2-liter of Pepsi Max and an orange. Her crazed, glazed over eyes are bloodshot and her hair is frizzy. She used to have a van from a previous decade but now drives a 2002 Chevy Suburban that she no longer needs since most of her children drive.

“Stressed Out Summer” lives in a cute little farmhouse that is never fully clean for more than 10 minutes. The dining room table doubles as storage for folded clothes her children (all sold separately) seem to believe will put themselves away magically. The sink comes complete with dirty dishes, which have decreased in number since she started buying paper products (because it was either the environment or her sanity, people). Tiny dog can be purchased separately and is programmed never to die, even after she eats Silica gel, Brillo pads and chocolate. 

You get the idea. If I was a doll, no one would buy me. So it’s easy to assume that if people really knew me, they wouldn’t like me. Authenticity is difficult. It’s risky. I struggle with it every day. How do I become the person I’m called to be without offending someone? Guess what? I don’t. Does that mean I sit in judgment of others? Absolutely not – but that does mean I speak the truth in love. It is quite an impossible task without the guidance of the Holy Spirit, who resides in those of us who have invited Him. I encourage you to let God, not status, body image, wealth, poverty, race, home life, life stage or anything else define you. Let us all put down our defenses and just be real. You aren’t alone. We are all imperfect. Even Barbie, who, if she was an actual person, would be 5’9”, have a 39” bust, an 18” waist, 33” hips, a size 3 shoe and weigh 110 pounds, putting her BMI at 16.24, which fits the weight criteria for anorexia. I’m not judging you, Barbie, but for the love of all that is holy, eat a cheeseburger, girl.